Hello
all,
Working or not working that is the question....
One of
the hardest things to deal with when treating Lyme/Spirochete infection is to
keep on treating the infection.
To keep
on taking those antibiotics or MMS or anything that one has chosen to use.
Sometimes
one sees results, sometimes one does not. Sometimes it can seem nothing is
happening
or it seems to be getting worse not better.
As you
can see from this page here : http://diaryoflymegirl.blogspot.co.uk/2012/08/my-swelling-odema-die-off-toxins.html
I have
also thought, when I saw those stripes appear or my feet swelling up like a
balloon, in my mind I would think:
Am I
going to be stuck with this forever?
Is the
treatment working or making it worse?
In
hindsight these were foolish questions indeed, maybe they were a
perfectly normal human reaction.
Lyme/Spirochete
infection seems to affect a part of the brain that tells one not to get
treatment
or that the treatment does not work or to just plain old give up because it is
so hard.
I wish I
could explain better why some give up with treatment, is it the clever old
spirochetes playing havoc on the brain?
Or is it
to do with human spirit?
I can
only go by my own experience with my own children.
My Own.....
My own
children have also gone through the stage of refusal of treatment and yes, each
has decided to give up treatment altogether.
As a
mother this was hard for me to just stand by and not be able to push them or persuade
them to treat themselves.
I left it
for them to decide the best course of action to take to treat or not to treat.
Their
refusal with my eldest lasted about two weeks she eventually begged to
start again and she didn't stop again and has continued ever since.
She said
in her words:
"Not
taking the treatment was awful the dark thoughts came back with vengeance. It
was horrible!
I got so
exhausted all the time I was so tired all the time, I felt like my brain was
just not working.
I felt like I was getting stupider and I had a
very foggy brain.
Then I
got cramps and aches in all my joints which were very painful all the time.
I was
less agile and had great difficulty in getting up from sitting down.
The
very dry eyes like I had for years before I started the MMS also came back, eyes
came as did my
constant
sneezing and nose irritation.
The
rashes came back on my wrists, arms and legs which was so uncomfortable and
itchy and drove me up the wall,
I also
got white spot all over my body which again is a symptom I had before I started
the MMS.
Yes when
I stopped the treatment it made me feel very out of control and it was as
though my
body was
falling apart.
I don't
know what came over me and made me stop the treatment.
I was very foolish I will never do that again!
Now I am
taking the MMS I can see that it does help, it does work and now all the above
horrible
symptoms have gone and I feel I am getting better, stronger everyday.
Yes
treating my congenital Lyme is the best thing I have ever done"
With my
youngest well she is more stubborn than the eldest and she would not take any
treatment for 2 months!
Again I
had to just standby and watch (I couldn't force her)
I had to let her decide on the best course of
action to take to treat or not to treat..
Well she
got to the point where she begged to start treatment again and in her words she
says:
"When
I stopped the treatment It was like I was so angry all the time.
I could not control my rage, it was like
something else was controlling me.
I felt so
depressed and so exhausted all the time I just could not get right.
Then out
of the blue I just started pulling out my hair and eyelashes!
I do not
know why i did that I couldn't help it.
Now I
know it was the Lyme making me do that to myself because now I have started
treatment again, the urge to pull out my own hair has gone away.
What on
earth was wrong with me?
Why was I causing myself so much pain?
I became stupid,
my brain just would not work properly. I
forgot how to spell simple words
like 'bed'
and I forgot how to count properly.
All my joints would hurt all the time and ache.
The
itching all over my body just would not stop maybe the itching caused the hair
pulling.
I could
not run as far as I used to.
The insomnia was just dreadful and I just wanted to sleep all day long and stay awake all night long.
The insomnia was just dreadful and I just wanted to sleep all day long and stay awake all night long.
I became
clumsier and would drop things all the time.
The brain
fog just got thicker and thicker.
I became
less tolerant to spicy foods and could not even tolerate chocolate!
Now I am
back on the MMS I can eat things like spring onions and chicken Korma.
I now
will keep on treating with MMS I do not want to go back to those horrible
symptoms ever again”.
As a mum
watching my children suffer broke my heart but what could I do?
I could not
force them, i had to allow them to make their own mistakes.
They
never saw me at my worst and I suppose it was hard for them to comprehend exactly
what a Spirochete infection/s can do to ones body.
They had to see for
themselves what they used to be like before treatment.
 |
| Here is an image of my youngest and her hair pulling stage: |
There is no known cause or cure for that matter.
All i can say is now she is back on the MMS the hair pulling seems to have stopped. I say seems to have because it can come and go.
Her hair pulling started when she stopped treatment for congenital Lyme.
This symptom has shocked her more than anything, as she said
" What could of happened next? I dread to think!"
Maybe she has the urge to pull her hair regardless of whether she has congenital Lyme or not who knows, I have a strong suspicion that it is connected to the spirochete infection.
Yes
keeping up with treatment is tough but I would say oh so worth it.
My Motivation
Ultimately
my major motivation is my two beautiful children how could I possibly let them
down and just give up treatment as I have come so far.
Then of
course my other motivation is for myself and yes I am being self-full not
selfish.
I try to
find ways to motivate myself for example watching the documentary film Under
our skin,
or making
plans for the future, when I will be able to get a new career/job and
not be reliant on others as much.
Looking
at photos of myself before treatment when I was at my worst with the crutches,
wheelchair, sticks, thick glasses, tube through my nose to feed me.
Then I look
at photos of me now, ok, I am not quite where I want to be yet but i am on my
way and I am very nearly there.
It would
be ideal to be better before Universal Credit arrives here in the
UK, at least.
For more
info on Universal credit you can visit Johnny Void excellent Blog:http://johnnyvoid.wordpress.com/
Or this
excellant Blog :http://diaryofabenefitscrounger.blogspot.co.uk/
I would
suggest if one does have Lyme/spirochete infection and with the way the
government disability
benefits in the UK are getting harder to obtain and the fact disabled people and the sick and not forgetting
the unemployed, are being forced to do mandatory workfare.
benefits in the UK are getting harder to obtain and the fact disabled people and the sick and not forgetting
the unemployed, are being forced to do mandatory workfare.
There is
a cure for Lyme/Spirochete infections ( which could be disabling one to the point of not being able to work) whether it be antibiotics or MMS at least
either will get one fit and healthy eventually You may not be able to return to your old career but hey you may be able to start a new career.
On the Lyme side of things.....
On the
Lyme side of things, keep treating even once you
feel
almost well, just keep going as I'm still getting better and better with
ongoing treatment.
Oh, I
also did a course of Hyperbaric Oxygen Therapy and that helped loads with
my neuro and mental symptoms.
Depression
lifted, OCDs reduced, head cleared generally.
Good luck
with everything.
Lyme
Girlx
**Always
consult a LLMD (Lyme Literate Doctor) or your own health care professional.**
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2012-2013 LymeGirl all rights reserved.
